Friday, December 14, 2012

Where the Time go? My Life now.

Life has been busy to say the least. I have been working and going to school, like normal. Now school is over (as of yesterday) and I did pretty well. I made two A's and two B's on my finals and all B's in my Class. Next semester I will be taking Human Anatomy, Human Anatomy Lab, Pre-Calculus Algebra and Developmental Psychology. I am very excited to take these class and hope that I do well.

My health is well for now. I say this because I never know when I will be sick again. I hope it never but I know that wont be true. I feel that my Pseudotumar Cerebra is in remission but I wont know for sure until I go back to my neurologist in January. My migraines are back under control with a new adjustment I had this past week. So I believe it is safe to say I am well

This year Christmas had approached very fast. I have not done any of my shopping yet. I know that there is still time but it a weird feeling no having it done yet. This Christmas will be the first time I will be well as far as with my Migraines and infection. Ever since I was 13 I have be sick with Migraines. And then last year I had a infection. I had to open my Christmas present with a PICC line in my arm to take my antibiotics. I am thankful that I am well now and that I now can say I have good health.

Tho this Christmas will be a first for my health in along time but also a first without my Great-Grandma Gee-Gee.  She was such a loving soul and is dearly missed but I am thankful she is in a better place. She is not suffering anymore. I like to believe she is with her three boys and her loving husband. I believe he was waiting on the other side of the moon for her like he promise. Never have I seen two people so in love with each other. It was a beautiful thing what they had. I was so bless to be apart of their life.

This Cat (the co-founder of CMA) She came down to
Houston, Texas for a  stim Trial . I was so Great to be
her Host while she was here.

This is My Great-Grandma, Gee-Gee, and I last Christmas.
So Thankful I got to spend time with her to make that
Christmas Memorable.   

I became a God Mother to my Best Friend son

Me and Blake

On Thanksgiving I did a fun run with my
Mommie and Brother. It was fun even though
we only did the walk.

My Brother, His Girlfriend and I, decoration our
Christmas tree. Love spending time with my family. 
Oh and I Love to babysit this little Turkeys. They are some
amazing little people.

Who I am and what I become simply amazes me.

I am just a simple girl trying to change the world! 

Sunday, November 4, 2012

Q&A about My stimulator for my Migraines

What do the stimulator feel like?
It a very light tingling feeling. It very soothing and relaxing to me. If you have ever had a TENS unit placed on any part of your body that what it feels like. This feel of the stimulator is unlike any most sensation and is hard to explain, is just something you would have to feel in person. 

Where is it located at in the body?
The battery or the generator to the whole system sits either in the hip area of the back or in the chest. I, myself have it in my right upper hip. I know a few who have it in their chest. They are place just under the skin; on top of the muscle. The wires or the leads are tunneled under skin just like a IV is placed. The wires are tunneled  through small incision from the hip, mid-back, neck, side-of-head and hair line.

How does it work?
The four leads are place on the suborbital nerves and the optical nerve in the neck. The leads are place on top of the nerves and sent electrical impulse to these nerves. Because these nerve are sometime responsible for the migraines the Neurostimulator interrupter to nerve from sending the message to the brain that it in pain.  You also have a remote that allows you to adjust the sensation that the wire and the battery products. This is what you us to help make the migraine pain decrease. Each person like a different program or vibration of the wires. This is something  that is costume to you. Everyone is different and so is every migraine! 

What limitation do you have right after surgery?
The limitation right after surgery is not to lift heavy things  and that about it. The doctors encourage you to move and rotation your neck to prevent a large amount of scar tissue to appear. You can drive with it and do all your normal activities. You can also do a wide range of sport from swimming to rock climbing.  I was implanted on a Thursday and the following Tuesday I was showing chickens of a school project on little pain medication.

What should I watch for after surgery?
There is nothing different from any other surgery. So the most important is infection! Once you get a infection in a incision then it will be on the hardware (battery and wires) and once that happens then the infection is very hard to cure and to heal properly. It important to stay out of water while you are healing, only take shower or short baths. No pools, hot tubs, lakes, ponds, rivers, or oceans. Anywhere there could be bacteria. Keep in mind that everyone heals differently, so it could be 6 weeks or 4 months. 

What limitation do you have after recovery?
It depends on the type of work. I was about to return to work as a nanny with in a week. I just depends on how your recovering but a week is a good amount of time. Unless you have to do heavy lifting as apart of your work.

What the recovery like?
It all depend on the person and the age. I was 18 when I had mine implant and like I said I return to school (High School) in a week. For me my hip incision was the most painful to heal and it could of been how active I was. I couldn't wear blue jeans for about a month and a half because of the pain. But all and all it is easy process.

Is the Stimulator visible to other people?
Not usually. The battery might be visible if it not implanted very deep and if you are wearing something very tight. The wire in the forehead are not normal visible but it all depends on the person and their body. 

Can you feel the wires or battery that are under the skin?
You  can not feel them just by themselves. By this I mean that you can't close your eyes and just simply feel the wires come from your battery to your nerves.  Now if you were to touch it with your finger then yes you can feel it but that is with your finger. Now the battery you can't feel it that often. Now if you are jump or running then you may feel the batter shift in the pocket that it is in .

How much has it decreased your pain?
I went from a non-stop migraine at 8 or a 9 most of the time to a low headache. A headache being a one to a five. I still get few
migraines but not like I did. I am able to stop a bad headache from turning to a full blow migraine with the adjustment of my stimulator.

Can you go swimming with your Stimulator?
Yes, you can go swimming with a stimulator. It is all inside your body so there no way you can be electrocuted. Also long as your incision is fully healed you should be OK. Also you can do all most any activity that  you set your mind to.

Is the stimulation annoying or bothersome? 
Not usually, it a very relaxing feeling I believe for people you have headaches. I have found that sometime if my stimulator is up to high then it can hurt or feel very uncomfortable but you can fix this by turning the stimulator off for a little while or turning it down. I have met one person who found the stimulator to be too annoying and not helpful at all and request to have it removed but out of the many of people I have meet this was only one.
What it like flying with your Stimulator? What should I expected?
There not much differences then when you normal fly. If the airport does not have the x-ray machine then you will most likely get a patted down. Which is not to bad but  not fun either. You can as to be patted down in private but either way there you wont have to remove your clothes or show them the battery. If the airport does have a x-ray machine the you will walk through it and you would have no problem. You are also given a card when you are implanted to show the official. You also want to remember to pack your charger and remote in you carry on. In case you bags get lost then you won't have to worry about replacing them. You might also have to take your charger case out of your bag because of the thick padding that in it. I had my bags search once because they couldn't see through it. So now I just take it out to prevent it.   

Wednesday, October 24, 2012

I miss my headaches....

These were the words that fell out of mouth a month after my Neuro Stimulator  implant.

How could you miss pain, something that made me suffer for years and turn you into a totally different person. I didn't know that the pain changed me but it did. I was quite and reserved with my words but more importantly I didn't talk about my emotional feelings, only my physical feelings, but what normal teenager does. After being implanted I was happy, happy the pain was gone, that I could live a normal "healthy" life. But then I was sad because I want to be that person I was five years ago.

I didn't know that I could be the type of person who could suffer from depression. I always held a smile on my face. I was happy. Happy to be alive, to get to travel and see the world, and to meet extraordinary people like the president (41 Bush). I got to be in Girl Scout and help change the world with my love of giving and help others. I thought that no one with this love in her heart to help change the world and bring smiles to people's face could ever suffer from depression.

At first I was embarrassed that someone my age (18) and with the thing I have in life could suffer from depression. But then I took a moment and I thought for five year you stuffed all the pain (emotional and physical) down and out of the way so that was not what people see that in you. Then I thought that it is understandable you have been in pain for five years. You are not use to living a painfree life. Your normal has changed over night. The thing I remember most when I told someone (medical personal) I missed my headaches was "that the craziest thing I ever heard." In that moment I thought how could this be so weird and nothing she has hear before. I felt alone and that everybody wanted me to be back to the girl I was five years ago. And the fact was I was not that person, the pain I felt daily changed me and I didn't know how to express that. As I came to terms with suffering from depression and realizing I probably have had it for more then five years. I then thought of what I need to do to get better.

I would need start doing therapy. I not sure how but I was place with a therapist who specializes in cognitive behavioral therapy. I didn't know it at the time but this therapy works with changing the way you think. Because the way you think is connected to the way you feel. That was probably the best choice I ever had to make was to open up to someone who I've never met before and who has no clue what my life is like outside the four wall of this office. I wasn't easy but it had to done. I have made great improvement with my depression. I don't feel depressed anymore but know that it a possibility for it come back. With what I have gone thought and now the stress of work and going to school I know that I could me easy for me to fall back in to that state. It a consent work in progress.

I am not say therapy is for everyone and that will fix your depression. I have tried the medication but found it only as a temporary fix to my problem. The important thing is to be sure to ask for help before it too late. You are also not the only one who is struggling with depression. But also it a understandable illness with that amount of stress people are put under today.

I am well and still go to therapy to help keep myself in check. I am only a year and a held out from surgery. And the passed year medical wise has been a roller coaster ride. I have said it before and will say it again I wouldn't trade it for the world. All this pain has made me who I am and at the end of the day that all that matter.

Live Life to the FULLEST!

Sunday, October 14, 2012

It the Little Thing I Life!

Something you may not know about my is I am hearing impaired. I have been for all of my life. I do not know the way it like to hear at a "normal" level. If I can see you lips moving I can understand pretty much everything your saying.

Brought tears to my eyes! Being hearing impaired myself, I thank God for not taking all of my hearing away but just enough to remind me that it the little thing it life that matter the most!

Friday, October 12, 2012

A Creed To Live By

  • Don't undermine your worth by comparing yourself with others. It is because we are different that each of us is special.
  • Don't set your goals by what other people deem important. Only you know what is best for you. 
  • Don't take for granted the things closest to your heart. Cling to them as you would your life, for without them life is meaningless. 
  • Don't let your life slip through your fingers by living in the past or for the future. By living your life one day at a time, you live all the days of your life.
  • Don't give up when you still have something to give. Nothing is really over until the moment you stop trying.
  • Don't be afraid to admit that you are less than perfect. It is this fragile thread that binds us to each other. 
  • Don't be afraid to encounter risks. It is by taking chances that we learn how to be brave. 
  • Don't shut love out of your life by saying it's impossible to find. The quickest way to receive love is to give love. The fastest way to lose love is to hold it too tightly; and the best way to keep love is to give it wings. 
  • Don't dismiss your dreams. To be without dreams is to be without hope; to be without hope is to be without purpose. 
  • Don't run through life so fast that you forget not only where you've been, but also where you're going. Life is not a race, but a journey to be savored each step of the way. 
 ~ Nancye Sims ~

Live Life to the FULLEST!

Sunday, October 7, 2012

Struggles that Made Me Who I am

Many of y'all who know me know that I have suffered from chronic migraines. I have had them since I was 13 years old and now that I am 20 years old. I have been pain free to a year and six months. Migraines has not been my only medical (or life for that matter) struggle. 

In a previous post I talked about have Pseudotumor Cerebri  I have had that now a total of four times now and three times the resolved with a spinal tap. My last spinal tap was traumatic and required me to go to the ER two days later because my parent could not get me to wake up and be fully responsive. There I was told I was very dehydrated because I lost too much spinal fluid.

The very thing that has allow me to be pain free would cause a struggle due to a infection. I got a infection in a incision in my back. I had no way of checking it because I went to work at summer camp three month after being implanted. I was given the all clear but I am not sure where the infection came from but with the lack of feeling and have no one to check it for me. I developed an infection that I would later find out that that I had it for a month or two before receiving treatment. The first step was oral antibiotics and having the doctor go in and clean the infection out. After a month I was not responding and we put on IV antibiotics and had to have a PICC line. The PICC line is place under fluroscopy (real-time x-ray) and it goes from a point on your upper arm (in a vein) then goes closes to your heart. By doing this this allows the medicine to be distributed equally throughout the body.  After that was implanted I did a month and a half of two times a day IV antibiotics. This was hard for my and my family because even with the medicine I was getting sicker and sicker. I was left with but to have my stimulator remove. Even after it was removed I would have to do IV treatment and use Medihony on my incision to help them heal and prevent another infection. I waited three months and the was implant again with the stim and all was good. Then about month later I was showing sign of infection and had to do the whole PICC line and IV antibiotics over again but thankfully for only a month and I was good. With the stim I also had to have revision to fixes wires and to move the battery. With the stim alone I have had eight surgeries. And would go through it all again if I had too.
This is a bad picture of me but it show where my PICC line is
 inserted into the arm. Still smiling through the ups and downs in my life.
This the tube of Medihoney. I really like it cause it help protect slow
 healing wound like surgical ones from getting infected. I have mainly
 use it in infected wound and it great and helps it heal.

Before I found the stim for my headache I did Botox and nerve blocks of all kind. Along with just about every drug on the market that the doctor believe could help me. Some,well three of the nerve block were done while I was I twilight zone. I also did physical therapy and chiropractic therapy.  

Before migraines and headaches my mom would say that I was a healthy child. But for me that include Earache and Severs disease. I had really had earache from as long as I can remember till about 12 years old. I had tube implanted seven different times and I had my tonsils and adenoids remove at the age of five.  Because of my earaches I was left with deafness in both ears. To me this has no effect on me because I do not know any different and i am really good lip reader. Sever disease is where the platelets in your feet become inflamed and put pressure on the bones and makes it painful to walk or even wiggle your toes. I got this because I was over dancing on pointe in ballet. The treatment was to stop dancing on that foot. The doctor never said I could dance on the other on and so I did but that would bit me in the butt because I would get it I the other foot and have to use a wheelchair for walking more the twenty steps. I was told that if I didn't do as I was told it could result in fracturing of the bones.  Which would been a cast and the whole nine yards. 

These are just my medical problems that I remember I was born at 27 week. Which means I was 13 weeks early and that was a struggle all it own. So I have always had a struggle in my life and every age. But the medical struggles were not the only kind I had I also have learning disabilities.

Since I was born early I was developmentally delay with everything but mainly my speech and walking. I did not speck till I was four years old and truth be told my family can't shut me up now. So once I started school I would be pulled for speech lesson. I also had to work hard to write and use a pencil. After a few years in school I was diagnosed with ADHD, hearing impairment, reading disability. I would out grow the ADHD.  I was always treated differently I felt thought I did need the help. I just wish I was seen as different but not less myteachers manly in elementary and now some in college. 

To this day I struggle with a reading disorder, hearing impairment, dyslexia, migraines (yes I am pain free but the stim is like a bandage it just covers up the wound)and I also pass out for unknown reason. Because the doctor do not know why I am passing out I have a heart monitor implant in my chest to monitor my heart rate. I also struggle with short term memory like if my mom asked me to do something if it not written down I will not remember. I also will think of a word and go to say it and it come out different than what I planned to say. An example would be for dishwasher it may come out as dryer. I know what each one is but my brain mixes them up.

Yes all of these things suck and my life different from your average Joe or Jane but the truth is I wouldn't have it any other way. My life is beautiful and I learn so many thing that not your everyday 20 year old has learned or seen. I am strong, I am a fighter. I stand up for things I believe in and more importantly I do not want to disrespected other beliefs. I help when I can. I want to make the world a better place. I want to dream big and if I miss I know I land in the stars. For me Failure is not an option. 

Love this Quote!

Sunday, September 30, 2012


We all have one whether it visible or not.

"There is something beautiful about all scars of whatever nature. A scar means the hurt is over, the wound is closed and healed, done with." ~ Harry Crews

I don't remember my first cut of the skin that would leave a scar or what it like to live without. I know that my skin is a beautiful olive/tan color and the scars are not faint. The scars I have are a deep brown or purplish and sometime white. I was a preemie, born as about 27 weeks weighing about 3 pounds 2 ounces and was 16 inches long. A beautiful baby just so excited to come into this crazy world, I couldn't wait the whole 40 weeks. I notice that went I save my had last year about this time I had scars from where the hospital put IVs in my head. Now at 20 I have close to 40 scars and all have a story that comes with them. but those are just the physical ones that everyone can see. The death of my Great-Grandparents and Great Uncle have left a heavy scar on my heart. Anytime I see: Tom and Jerry, Loony Tunes, Peaches, Toast or coffee, these are the thing that remind me how lucky I was to be raised with the help of grandparent and would not trade it for the world. But reminded me of a scar and in most cases a "good" scar that I have on my heart for them.

So if you know me or have ever stayed with me for a day you know that I now very graceful. This is something that came with my migraines. I fall and slip and that alone is the cause of two 2-3 inches scars on my shin from shaving. Yes shaving, they are not beautiful and are the 2 scar that people ask how and in the world this happen. I also have some scars that are jumping over the couch and scratching my thigh from a staple. And from burning myself when getting thing out of the oven.

Now the medical scars I have 10 of them and all were in a step to getting better. I have one on my lower hip, mid lower back, three in the middle of my back,  two on my neck and  2 on the right side of my head. Now those two are not visible because of my hair. The last one is on my ankle from were I pass out on the side walk.

So the point this blog is to embrace your scars. My parent ask me anything they see my scars how are you going to explains those scars because most of them are visible. If I am in a swim suit there even more but the truth is you don't have to love my body. It not something your carry around every day. I do. And I love who I am. Where I am at in life. Who I have become. I love my scars. To me it like carrying a scrapbook around where I go. It a piece of home. A piece of the road something less traveled upon. The scars I have remind me that I have fallen and have gotten back up and kept on moving forward.

This was me when I was born and My mom. 

So not a Daddy's When I was little I would fall asleep on me like this

My Dad and I now. Still a Daddy's Girl :)

Wednesday, September 26, 2012

Left or Right!?

No matter the road I take I know the destination will be amazing! As your reading this please don't feel sorry for me or in Texas some my say "bess your little heart." Dont feel bad or ask how do I handle this I know it has something to do with the man up stairs. So lets start with at story...I sure do love a story good or bad!

When I was on my family vacation to Washington D.C. in 2007 I got my first migraine and I remember my mom letting me sleep on a bench at The Arlington National cemetery. Rought day to say the least once returning home I try to return to normal my that was never something that would happen. So three months after that migriaine, I was still having them and my mom took me to a neurologist. The diagnose was Pseudotumor Cerebia. They gave me steroids and diamox (water removal pill). They also did a spinal tap to see what the pressure was measuring in my head.

Pseudotumor cerebri (PC)  literally means "false brain tumor." It is likely due to high pressure within the skull caused by the buildup or poor absorption of cerebrospinal fluid (CSF). The disorder is most common in women between the ages of 20 and 50. Symptoms of pseudotumor cerebri, which include headache, nausea, vomiting, and pulsating sounds within the head, closely mimic symptoms of large brain tumors. I had all of those symptoms. When I was being woken up my mom I would say to her to turn off the vacuum that was on my ears. I literally thought my head was going to explode and there was nothing anybody was going to do about it. This doctor who diagnosed me with OC was a least the 6th or 7th one. I have had 3 spinal taps and all of them where over 30 and normal in less then 10. I am very thankful tht there has been no lasting damage to mys eyes or brain. 

But as of September 18th I have been battling PC. And yes I am winning. The thing is there no cure, just treatment and remission. I believe it was caught very early because the only symptoms where headaches and migraines which felt better after laying flat for some time. I also had this rushing noise inside my head like a airplane was fixing to take off.  I am also thankful That I was in remission since September of 2008.  For right now I have choose to treat it with at water pill, Diamox. I NOT my favorite drug but it better then a spinal tap. I want to thank y'all for reading this post and know I appreciate your thoughts and prays. Please know I will be ok and this is not a set back just something to keep me ground and reminded me what really matters I this world!

Sunday, September 16, 2012

Living Life! Feeling Free!

Life has been so busy with my school and work. I now drive to school two days a week and work three days a week. I really enjoy doing both add being able to come home to a home cooked meal with my family.

Chronic Migraine Awareness Fonder and Board Members came to my hometown of Houston Texas. It was wonderful to been them. We went to the mall to spread awareness and went ice skating. I also spoke it Advance Migraine Relief and Treatment Center seminar. I was not planning on and was so scary. I felt that I did a good job and I did enjoy sharing my story.

A Few people from CMA

Ice Skating with Cat the Fonder

I am feeling good and life is wonderful right now for me! I could not ask for anything more or less in life. I am also volunteering with Chronic Migraine Awareness and I am hoping to make a difference in this world and I believe this Non-profit Organization is the step in that direction. 

Tuesday, July 24, 2012

My Paint Brush!

I keep my paint brush with me Wherever I may go, In case I need to cover up So the real me doesn’t show. I’m so afraid to show you me, Afraid of what you’ll do – that You might laugh or say mean things. I’m afraid I might lose you. I’d like to remove all my paint coats To show you the real, true me, But I want you to try and understand, I need you to accept what you see. So if you’ll be patient and close your eyes, I’ll strip off all my coats real slow. Please understand how much it hurts To let the real me show. Now my coats are all stripped off. I feel naked, bare and cold, And if you still love Me with all that you see, You are my friend, pure as gold. I need to save my paint brush, though, And hold it in my hand, I want to keep it handy In case somebody doesn’t understand. So please protect me, my dear friend And thanks for loving me true, But please let me keep my paint brush with me Until I love me, too.

Dare you to dream!

This is one of my favorite poems of all time! Let nothing hold you back from exploring your wildest fantasies, wishes, and aspirations. Don't be afraid to dream big and to follow your dreams wherever they may lead you. Open your eyes to their beauty; open your mind to their magic; open your heart to their possibilities. Dare to dream. Whether they are in color  or in black and white, whether they are big or small, easily attainable or almost impossible, look to your dreams, and make them become reality. Wishes and hopes are nothing until you take the first step towards making them something! Dare to dream, Because only by dreaming, will you ever discover who you are, what you want, and what you can do. Don't be afraid to take risks, to become involved, to make commitment. Do whatever it takes to make your dreams come true. Always believe in miracles, and always believe in you! ~ Julie Anne Ford ~ 

Monday, July 23, 2012

Life as I know it :)

Wow! I have been so busy lately. I am doing my second class for the summer. I did American Government in the month of June and now I am doing Texas Government. I am really not enjoy it but it is somewhat easy, but it has a lot of writing. This will be my last class at Texas Woman's University and then I will start class on August 30 at Sam Houston State University. I will be taking 12 credit hour on Tuesday and Thursday.

I am also working at a Daycare in my Hometown and also a caregiver for a person who has a disability. I really enjoy working and helping others. It really make me happy and feel that I have a purpose in life. I think that the rest of the year is going to be crazy with living at home, going to school and having two part-time job. I can not wait to get all of my pre-recs for nursing school so that I can apply and take the next step in achieving my dream on becoming a nurse.

My headaches and migraines are back under control. My battery would not charge for a month because my charger was broke, but once I received my new charger I was back to new. I really enjoy having a battery to control my headaches. I have heard many of different stories about neruo stimulation for migraines and not all of them have a happy ending. I am so thankful that my system works and controls my pain. I am glad that my medical condition is slowly getting better. I did find out a few days ago that I have to have a Internal  Cardiac Monitor. This will stay in my body for two years and it will record my heart beat every second of everyday. The hopes for implanting this is for my doctor to see what happens with my heart in the moment when I pass out.

So life is good right now, I am busy and going to school. I have a loving family and so thankful I can spend just one more day with them.

Saturday, June 30, 2012

International: Peripheral Nerve Stimulation (PNS)

PNS is commercially available for use in select international markets.
Peripheral Nerve Stimulation of the occipital nerves - intractable chronic migraine
Peripheral Nerve Stimulation of the occipital nerves is a new therapy for intractable chronic migraine and is only approved in select international markets.
St. Jude Medical Neuromodulation Division is a pioneer in developing technologies for the management of chronic pain and other neurological disorders. With innovations such as constant current stimulation delivery, we have been a leader of the neuromodulation industry for over 30 years. We are now applying our proven technology to provide a new option for managing the pain and disability associated with intractable chronic migraine.

A Proven Technology with Significant Advantages

A randomized double-blind, controlled study of chronic migraine sufferers who used St. Jude Medical PNS systems revealed the following:1

Peripheral Nerve Stimulation (PNS) - Reduction in Overall DisabilityReduction in Overall Disability

At 12 weeks, the Migraine Disability Assessment (MIDAS)
questionnaire indicated participants in the active group
had a 41% reduction in overall disability compared to a
13% reduction in the control group.

Peripheral Nerve Stimulation (PNS) - Reduction in Headache DaysReduction in Headache Days

At 12 weeks, patients who received stimulation reported a
36% decrease in their number of headache days compared
to the control group which reported a 25% decrease.

Peripheral Nerve Stimulation (PNS) - Quality of LifeQuality of Life

At one year, 68% of patients reported that their
quality of life improved, 26% reported that it
stayed the same, and 5% reported that their
quality of life deteriorated.

Peripheral Nerve Stimulation (PNS) - RecommendationRecomendation

At one year, 88% of patients reported that they would
recommend the procedure to someone else and
12% reported that they would not.

How PNS Works

Neurostimulation systems are designed to regulate the body’s electrical systems. They function much like pacemakers, except that instead of sending pulses to the heart, the leads carry the pulses to the occipital nerves, changing the way the pain signals are transmitted. This localized delivery does not produce lingering systemic side effects—a common problem with migraine drugs.
A neurostimulation system consists of the following components:
A stopwatch-sized device containing the battery and electronics that create the pulses which stimulate the nerves
Leads and Extensions
Wires that carry the pulses from the neurostimulator to the nerves
Patient Programmer
A remote control device that enables the patient to turn the neurostimulator on and off and adjust power levels
Clinician Programmer
A remote control device that enables a clinician to program the neurostimulator and adjust stimulation

Who May Be a Candidate

Patients who have been diagnosed with intractable chronic migraine may be candidates for peripheral nerve stimulation. Intractable chronic migraine is defined as headache lasting at least 4 hours per day for 15 or more days per month, not responding to three or more preventive drugs, and causing at least moderate disability (determined using a validated migraine disability instrument [e.g., MIDAS or HIT-6]).
1. Silberstein S, Dodick D, Saper J, et al. The safety and efficacy of peripheral nerve stimulation of the occipital nerve for the management of chronic migraine. Poster presented at: 15th Congress of the International Headache Society; June 23-26, 2011; Berlin, Germany.
Website that I go this information from and also the company that I have my battery through. I also have two more contacts then this the pictures that above. 

Tuesday, June 26, 2012

Another Hiccups :(

Today I found out since my battery is not working that it will have to be surgically fix. My battery for my stimulator has fallen to deep into my hip to connect with the charger. So I can't charge it and it is died not for a week and half. I hope that the insurance doesn't take forever but who knows. Till then I have a very unwelcome headaches that turn into migraines here and there. I am determined to have a good summer though.

Saturday, June 23, 2012

A day in the Life of Migraineur

This is a typical day for me when I have a migraine. If I have to go to work or school I am up by 7 at the latest. I can normal base the night before how I will be feeling in the morning. So when I first wake up I decide whether I need to shower to wake up or not. I sometime have to shower to loosen up and ease the pain. Then I take my anti-seizure and/or muscle relaxer. And then I eat breakfast and because I have food triggers I usually have something with whole grain or fruits. I normally start the day off at a four or a five. As the day goes on I become in more and more pain. By noon I am normal in enough pain where I need to rest in the dark or nap. This isn't always easy to do and sometime I have to push through the pain. By the end of the day I am wide out but the sad part is that I can't sleep due to the pain or insomnia. By the end of the day I am at a eight or nine. The pain of the migraine is a dull and achy pain. Something it can be sharp and on one side of my head. But this is just the pain in my head. Sometime the pain is behind my eyes and it just feel like someone is trying to push my eye balls out. When I have a migraine my whole body hurts all over. Not only does my body hurt but lights and sounds hurt. It hurt to hear the sounds and to see any lights. It a kind of  piercing pain that hurts way in the brain. There is also other thing that come along with migraines. Some symptom that I have along with migraine, is dizziness, ring of the ears, numbness in my arms and legs, muscle cramps, this list could really go on. This side effect that come from my migraine are hard to deal with alone. 
Migraines are very hard to deal. Along with the fact that no body really understand what we are going through. Not only is having migraines hard but the days recovering for a migraine are also hard and debilitating. I have struggle with migraine for the six years and It not the easiest thing I have done. I have had a lot of ups and downs. I spent a lot of my day in my bedroom trying to sleep away the pain. The days I do go out I have to be sure I have medicine in case I get a bad migraine. I am proud to say that I am a would traveler and manged to earn my Silver and Gold award through Girl scout. I never let my migraine stop me from doing what I want to do in life. I will also be fight against them for my dreams no mater how big or small.

This is me in Switzerland in 2011.

Some of my art work to remind myself to Live Life to the Fullest

This is a picture that I took. I love taking photograph of the great outdoors

This is me on a life flight tour on the top of a hospital in Houston Medical Center

Me on a boat in Germany in 2009

  I love to travel and I try and let nothing stop me

I show chickens in High School. This in 2010 when I was ninth place in  Houston Livestock show and rodeo. This was a very proud moment for me.

This is something I found online. That I like and find really true. 
I hope this post is helpful to everyone and that your pain free.

Thursday, June 21, 2012

Summer has been busy!

It been a busy busy summer for me. I have two job so that keep me pretty busy. I am also taking summer school which keep me busy at nights and on the weekend. In two week I will be going to my favorite place in Texas. It called the Frio River in Concan, Texas. I have been going there since I was five years old and it just a place where my cell doesn't work and I can just relax. And now it that I am adult I can go there and act like a kid. There are also a few other place along the Frio River that I am looking for to going while I am there too. Like Garner State Park, Neal's Lodges and Frio's Dry Fifty. I will also be staying at Yeargan's River Bend. It a wonderful little place to stay and it a very family friendly place to stay and bring your children and grandchildren for years to come. I really have enjoyed going there and growing up there. The river is a rock bedded river and the water is crystal clear.

This is the cottage at Yeargan's River Bend

This two picture of my brother and I  at the Frio River when when were younger.

This is a picture of the Dry Fifty

So all and all I have been having a wonderful summer and Headache wise I am doing well and feeling Great!

Sunday, June 10, 2012

What Headaches?

So it been about a month without any major headaches (knock on wood!). I am doing wonderful and living life to the Fullest. I am recently watch "The Help" for the first time and I have fallen in love with it. I like that the book that is talked about in the movie is from the view of the African American Woman's eyes. Over all it a wonderful movie and I look forward to reading the book this summer. Today I watch a movie called Sarah's Key. It a story about a girl who was picked up during the Vel'd'Hiv Roundup on July 16 and 17 of 1942. This happen in Paris. The French Police when a rounded up about 13,000 Jewish people and sent them to camps. Most of them would die. In the Movie there is a Journalist who is writing an article about this event that there is not one image to prove that this happen. During her research she find out about this girl and try to track her down to talk to her. I wont ruin the movie for you but it has a great story.
This is the Movie trailer to Sarah's Key

This summer one of the things I plan on making my bucket list. Lately I come to realize how short life is and that you should live it to the fullest. I plan on just doing that. So what something on your bucket list that your want to do?

Tuesday, June 5, 2012

How Volunteering Has Changed my l Life

Volunteering has become an important part of my life. It has given me the opportunity to give back to others, meet people and discover my career path. I have been a life-long volunteer.  I started learning the importance of volunteering as a Girl Scout in kindergarten.  One of the first things we learned was the Girl Scout Promise and what it means.  The Girl Scout Promise states “On my honor, I will try to serve God and my country, and to help people at all times and live by the Girl Scout Law.” This statement has made a positive impact on my life.  Volunteering has been significant in developing positive self-esteem and confidence in me.  Knowing that I can help others that I don't know and have an impact in their lives through a positive manner makes a wonderful heartwarming experience.  I have volunteered with many different organizations in my community and have learned so much from my experience but, the two that made the biggest significance in my life are the Juliette Low Camp and Tomball Regional Hospital.

The Juliette Low Camp is a camp in Missouri for girls with disabilities from ages seven to twenty.  I volunteered to be a counselor for fifty girls with a wide range of disabilities.  The camp lasted for a month.  During that time, I volunteered a total of 300 hours.  I went through a week long training to learn how to care for each girl and their disability.  I also learned that people come in many different packages; and they all have a heart and feelings.  Just volunteering at the Juliette Low Camp opened my eyes, to truly not judge a book by its cover.  The most important lesson I learned is to not take life for granted and to love every minute you’re given. 

At Tomball Regional Hospital I volunteered five to ten hours a week for eight weeks.  The main area I volunteered in was the Nursery and the Neonatal Intensive Care Unit (NICU).  During the time I volunteered there, I learn many things like how to answer the phone professionally and make medical charts.  I also learned what happens when a baby is born and is very sick and has to go to the NICU.  The most important thing I learned, that no one there taught me, was that I want to be a NICU Nurse.  I am very thankful that I was able to volunteer in the nursery at Tomball Hospital because this has helped me to discover what I want to pursue in college.

Volunteering has changed my life in many of ways.  Everybody needs help at some point in their life.  I have learned that it is important for those in your community to lend a helping hand when possible.  By volunteering, it has taught me to give to others without expecting anything in return.  

15 things about me!

1. I have two middle names
2. I love Girl Scout and been in it since Kindergarten
3. I took Ballet from age 3 to 12
4. My favorite drink is Vitamin Water
5. My favorite food it grilled cheese
6. I like going to be Beach and being around water
7. I rasie chickens and love it.
8. I want to go to college and become a Nurse
9. I have to sleep with two fans on every night.
10. I am a nanny for two boys
11. I live Life to the FULLEST.
12. I love any medical show on tv
13. My favorite color is blue, green and yellow.
14. I collect spoons from every where I go.
15. I love my life and who I am. 

Sunday, May 27, 2012

My Neurostimulator

This is a video about my Neurostimulator; how it works and changed my life.

Saturday, May 26, 2012

Death with Dignity

        This is my review of a Documentary called How to Die in Oregon and also the law in Oregon that goes along with the Documentary.

        Dignity, we all want it but must of us are denied just that, dignity. Imagine being told that you only have a few months to live and you will never be the same person you believe you are right now. You will lose your ability to care for your everyday needs. Your daily needs will be placed in the hands of your loving family, or even strangers; but what if you could prevent that, being a burden that most don’t want to be. As of today there only three states in the United State of America, the land of the free and the home of the brave, that allow you to choose Death with Dignity.
            Death with Dignity is also known as physician assisted suicide. This is where a physician aids in a death of a human being. This is not for just anyone; it’s for a person who has a short time left to live. They are also sick and are going to die a long and painful death. They also may choose this because they do want their last memory of them for the love ones to be them vomiting constantly, living in a diaper, unable to eat on their own, or just simply being very ill and unable to act as they did before they became sick. Death with Dignity can be done at home or in a hospital; it is up to the person and the doctor. No one case or choice is the same or preformed in the same way.
            Death with Dignity did not originate here in the United States. The first country was the Netherlands legalized Death with Dignity in 2002. Before it was legalized it was done by a physician prescribing lethal overdose of barbiturates that would be taken by the person themselves (Schoen). Once it was legalized they change their method to lethal injection. Today there are eight countries other than the United State that allow Death with Dignity, but each country has different requirements and ways to do it. Not one follows the same procedure or requirements. For example in Japan there are four requirements and all must be met. They are “the patient is suffering in unbearable physical pain, death is inevitable and imminent, all possible measures have been taken to eliminate the pain with no other treatment left available and the patient has clearly expressed his or her will to approve the shortening of his or her life” (Robinson).
            Reasons that people would choose the Death with Dignity are that they know they will die a long and painful death. They will be unable to care for themselves and become a burden on the family and friends. Some condition that Death with Dignity has been used on in the past are: cancer of the breast, colon, pancreas, lungs, prostate and ovaries, Amyotrophic lateral sclerosis, chronic lower respiratory disease, heart disease and even HIV or AIDs (The Oregon Health Authority, 1). Most of the people who have one of these conditions have been fighting for a very long time and have been given the diagnoses that they only have short time left to live and there nothing left to try or do. The doctor’s main goal from there is to just keep them comfortable for the time they have left (Campbell).
            Oregon was the first state in the United States to adopt the Death with Dignity act, though other states have adopted something very similar. The act was adopted by the voters on November the eighth in 1994. “It was then delay with a legal injunction, but after proceedings that included a petition denied by the United States Supreme Court, the Ninth Circuit Court of Appeals lifted the injunction on October twenty-seventh 1997” (The Oregon Health Authority, 3). To this day there is still a lot of controversy on this act. As of today, the act is still in place. This law does not allow euthanasia, nor does any other state in the United State. What make this act different is that euthanasia is done by the doctors and Death with Dignity act is done only by the person who is able to physically give themselves the lethal dose of medication.
            In order to legal processed the Death with Dignity act the person must be a resident of the state of Oregon. There is no one thing that determents the person residency but the thing that can be accepted are: an Oregon Driver License, a lease agreement or property ownership document showing that the patient rents or owns property in Oregon, an Oregon voter registration card, or a recent Oregon tax return. This part is up to the physician to determine if the person is a resident or not. There is no minimum residency requirement; this part too is up to the physician.
The process of the Death with Dignity act is one with many forms to fill out and talking to many of people. Though these forms are not required by law, the forms are asked to be filled out by the Oregon Health Authority just to have on record. There are five compliance forms: patient request form, attending physician form, consulting physician form, psychiatrist/psychologist form and pharmacy dispensing record form. Each one requires detail information about the illness and present condition of the person. Also there is an evaluation of the person’s mental state of mind. These are submitted to the Oregon Health authority preferable to be informed when Death with Dignity is performed, but if not submitted there is no penalty.
The next sets of forms are for after the Death with Dignity is preformed, and they are titled surveillance forms. The surveillance forms contain the reporting physician interview form and chronology and death certificate extract form. The reporting physician interview is a report about how the process went and if a lethal dose of medication was used or not. It is also asked about the attending physician and whether they were present or not. The chronology and death certificate extract form is an oversight of the dates of when the person ask for Death with Dignity, the dates the first five form were signed on, what the gender, race, marital status, age, county of resident, occupation of the person, if the family was inform of their choices, and what their level of education they had (The Oregon Health Authority, 4). This is just the paper work side of the process for the person and the physician. There are other rules that have to be followed. To find all these form the best website to use is the Oregon Health Authority. There is many of website that you could find information on but many of them have incorrect information on the pages with a one sided take. The Oregon Health Authority also informs the people that there could be other option and insure the people that this is their last resort(The Oregon Health Authority, 6). This page is updated often and will provided the people with the correct information they will need in order to legal proceed Death with Dignity.
            There are some requirements that have to be met in order for the Death with Dignity to be legal. The first being that the person has to be eighteen years of age, capable of making his or her own decision, a resident of Oregon and have an illness that will lead to death in the next six months. These four requirements have to be met in order for the person to request a prescription of lethal dose of medication for fulfill their wish for Death with Dignity, but before this can be done, there are some other rules that has to be met in order for the physician to write the prescription. The five rules are: “the patient must make two oral requests ask for Death with Dignity to his or her physician, and it must be is separated by at least 15 days. The patient must provide a written request to his or her physician, signed in the presence of two witnesses. The prescribing physician and a consulting physician must confirm the diagnosis and prognosis. The prescribing physician and a consulting physician must determine whether the patient is capable making their own decision. If either physician believes the patient's judgment is impaired by a psychiatric or psychological disorder, the patient must be referred for a psychological examination. The prescribing physician must inform the patient of feasible alternatives beside the Death with Dignity act, including comfort care, hospice care, and pain control. The prescribing physician must request, but may not require, the patient to notify his or her next-of-kin of the prescription request. If these form are not fill out and filed with the Oregon Health Authority and something was to happen or go wrong legal action could be taken into place and an investigation that in the long run could result in the doctor losing his or her license to practice medicine.
            Washington and Montana are the only two other states, as of the end of 2011, in the United State that allow Death with Dignity act. Washington passed the act on November 8, 2008 and then went in to effect March 5, 2009. Montana passed the law in November of 2009. There are now six other states that have laws and acts just like Oregon’s Death with Dignity Act. Georgia has a law that it is illegal to knowingly and willingly help someone commit suicide. This law was passed February 21, 2012. This is proof that the laws are ever changing (Barber). Hawaii, Massachusetts, New York, Pennsylvania and Vermont are states that have started the process of allowing Death with Dignity for the people of these states. These five states are all working to what Oregon has for their residents, but they just waiting for the law to be approve because of legal injunction and controversy that comes along with it. Massachusetts and New York are the two states that just passed the Death with Dignity in February of 2012.
            Some controversies that arise with the Death with Dignity act are that the person is playing God, taking nature into one’s own hands or even the fact that it invalidates life itself. Also, people and some doctors believe that this act violates medical ethics (Schoen). Then another one people believe that Death with Dignity gives the physician the power not the patient (Richman). Some reason for the Death with Dignity act could be the financial burden of continuing treatment to keep the person comfortable, loss of dignity, loss of bodily function, and even becoming a burden on the person family (The Oregon Health Authority, 4). Whatever the reason, it all comes down to the person individual beliefs. Most people who are choosing Death with Dignity want control because they know if they go on with this illness they will lose all of their control (Robison, 2).
            People may say we are playing the role of God, meaning we are taking Gods will in our own hands. Many people believe that this effect or goes against the religion. The way I see it that if you believe it goes against then your beliefs then you do not have to choose Death with Dignity, but this reasoning doesn’t have to control someone else’s life or even their own personal choice. Another controversy is that we nature into our own hands, but how is this any different from what we do with our animals when they are suffering. We say we are putting them out their misery when they in pain and are suffering. As human we don’t allow our animals to suffer or be in pain. So how is this any different? They both, a person and animal, will be in pain, unable to care for themselves, to walk or even communicate. Yes I know there is a difference between animals in human but how different? We are both God’s creation. How can this be any different? Yes we have a choice, and animals well the choice is made for them with the best intentions in mind but in the end there peace for both humans and animals. People also bring up the argument of the second commandment, Thou shall not kill, but Death with Dignity is not murder. There is no one who administers the medicine to the person, the person taken willingly by them.
            Some say that the Death with Dignity violates the medical ethics. Physicians take an oath and part of that oath is to do no harm; but to some physician have different meaning of what do no harm is. It is also different for person at the same time. So some people see that seen the physicians writing the prescription for the lethal dose of medication that that is doing harm to the person. Even though the person will most likely die within the next few month the physicians is assisting them to die prematurely and not allowing nature to take its course (Schoen, 3). Other seem to think that allowing the Death with Dignity act to be in place it give the physician power over others’ live, because they are the one prescribing the medication. The physician also has the right to deny the person of the prescription. This argument could be for or against it just all how you see it. This also could be seen as limiting a person freedom, rights that we are given at birth. It is all in the hands of the doctors (Richman, 5). Richman state in the article “Why empower the doctors? Suicide isn’t a medical issue. It’s a moral issue.” I don’t believe it could be put any better. Everyone has a different set of morals and we don’t force others to abide by our moral that just not how it works. We are all individuals we are not going to all one hundred percent agree on one thing. Not every physician has to abide by the Death with Dignity act; neither does a hospital or a hospice center.
            There are many reasons why I see Death with Dignity to be expectable on multiple levels. If someone is going to die a long and painful death, why should they have to suffer? When they probably already suffer years of pain and having to rely on others helping them with their daily needs? Death with Dignity is not an easy way out of the person life. I know what it like living with pain, I have chronic daily migraines, sometime the pain can just be too much to handle. Thank goodness I was able to gain control on my pain levels. But who am I to tell someone that they cannot be pain free, to allow themselves not to be a burden on their family or to have to loss all of their dignity. If a person is at peace with it and ready to leave this earth then who am I to say they can’t do that.
            Recently in 2011 there was a documentary release to tell the story on how real people make their choice for Death with Dignity. The title is an ironic one, How to die in Oregon. The title is ironic because not only does it show you physically how to die, but on an emotional level as well. Besides telling the stories of people who are suffering from a terminal illness but it also share the story of how one woman is trying to fulfill her husband last wish. That wish was to change the laws in Washington State where a person who is suffering from a terminal illness can choose Death with Dignity like the people in Oregon. The documentary is one that makes you think not only on a moral level, but about the world we live in. For the people who have not seen someone suffer a painful illness; it is hard to watch, but this documentary was main to get everyday people thinking. There is a lady in the documentary named Cody, who is suffering from liver cancer. She says in the documentary that she doesn’t want to have to die; she wants to live and be present in her children lives. Another statement in documentary is that the law is not about death but about having that choice, to choose when your life is over (Peter).
            I believe that more states should allow Death with Dignity act to be part of the state consultation. If more states allows this we would see less people suffering a long and painful death. I don’t see how Death with Dignity is any different from the death penalty. How can a state sentence people to death because of something they did but we don’t allow people who are suffering the choice to end their own life. As of right now thirty-four state have the death penalty law but yet only three allows Death with Dignity (Peterson). I do not see how this is right or even fair.
            My great-grandmother was blind, had Alzheimer’s, and had a tumor on her brain. The tumor made her unable to walk and that care of her daily needs along with the Alzheimer’s. She was always in pain towards the end. She hated the fact that she was in diapers and that her grandchildren had to take over her daily needs. I called her Gee-Gee and she cared for me as if I was her own daughter. My great grandmother was a nurse who worked in a nursing home and saw what it was like for people to lose their dignity. She would tell me that she never want that to happen to her. As my great grandmother declined she was ask to sign her legal rights over to my mother. We then knew that is our responsibly to just keep as comfortable as possible. When she started to decline and was un responsive we began to see that it was soon her time. As a family we decided not to resituate or use any means to prolong her life like intubate her or force a feeding tube in her. We did this because it was her wishes before she became ill with Alzheimer’s and we did not want to go against those wishes. My great grandmother stopped eating and drinking about two days before she passed away because she knew by doing so she would not live long. If my great grandmother would have been of sound mind and in a different state she could of choose the Death with Dignity act. The act state that the person must be of sound mind and able to take the medication on their own, my great grandmother was unable to do either. In my great grandmother own way she did choose Death with Dignity by not eating and drinking because without those two important things she knew she would not last long.
            I wish that all state would adopt something similar to the Death with Dignity act but I know that would take a lot change on multiple levels. I know this change will not happen overnight but hopefully the more people who see the documentary and realize what it like to see someone suffer from a terminal illness their minds may change.

Work Cited
Barber, M. "Death with Dignity Around the U.S.." Death with Dignity national center. Mandate Media, 2011. Web. 16 Apr 2012. <>.
Byock, Ira. "Dying with dignity." The Hastings Center Report Mar.-Apr. 2010: 49. Gale Opposing Viewpoints In Context. Web. 28 Feb. 2012
Campbell, Courtney S., and Jessica C. Cox. "Hospice and physician-assisted death: collaboration, compliance, and complicity." The Hastings Center Report Sept.-Oct. 2010: 26+. Gale Opposing Viewpoints In Context. Web. 28 Feb. 2012
"FAQ For the Death with Dignity Act - WA State Dept. of Health." Death with Dignity Act. N.p., 2010. Web. 16 Apr 2012. <>
How to Die in Oregon. Dir. Richardson, Peter, Clearcut Productions, and HBO Documentary Films. New York, NY : Docudrama : Distributed by New Video, 2010. 1 videodisc (107 min.) : sd., col. ; 4 3/4 in.
"Individuals Should Have a Legal Right to Choose Death" by Thomas A. Bowden. Assisted Suicide. Sylvia Engdahl, Ed. Current Controversies Series. Greenhaven Press, 2009. Thomas A. Bowden, "After Ten Years, States Still Resist Assisted Suicide," Ayn Rand Institute, October 30, 2007. Copyright © 2007 Ayn Rand® Institute. (ARI) All rights reserved. Reproduced by permission.
"Legalized Physician-Assisted Suicide Empowers Doctors, Not Patients" by Sheldon Richman. Assisted Suicide. Sylvia Engdahl, Ed. Current Controversies Series. Greenhaven Press, 2009. Sheldon Richman, "The Fraud of Physician-Assisted Suicide," Future of Freedom Foundation, June 24, 2004. Copyright © 2004 The Future of Freedom Foundation. All rights reserved. Reproduced by permission.
The Oregon Health Authority, . "Death with Dignity Act." State of Oregon, 2010. Web. 16 Apr 2012. <;.
Peterson, K.. "Death Penalty: 34 States Permit." The Pew Charitable Trusts, 2005. Web. 16 Apr 2012. <>.
"Physician-Assisted Suicide Violates Medical Ethics" by Physicians for Compassionate Care Educational Foundation. Problems with Death. David A. Becker and Cynthia S. Becker, Eds. Opposing Viewpoints® Series. Greenhaven Press, 2006. Physicians for Compassionate Care Educational Foundation, "Amicus Brief for Physicians for Compassionate Care Educational Foundation in Support of Petioners," Gonzales v. Oregon, Supreme Court of the United States.
Schoen, E. K.. A brief history of physician-assisted suicide and euthanasia in europe and the united states. n.p., 2008. Web. 16 Apr 2012
Robinson, B. A.. "Physician Assisted Suicide (PAS)." Religious tolerance. n.p., 2009. Web. 16 Apr 2012. <>.